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Horizon Pharma plc Announces the Launch of “Cystinosis United” to Educate, Inspire and Connect the Cystinosis Community

HORIZON PHARMA PLC ORDINARY SH (HZNP)  More Company Research Source: GlobeNewswire
Last horizon pharma plc ordinary sh earnings: 5/9 07:00 am Check Earnings Report
PDF DUBLIN, Ireland, Jan. 30, 2018 (GLOBE NEWSWIRE) -- Horizon Pharma plc (NASDAQ:HZNP) today announced the launch of Cystinosis United, an initiative created for people living with nephropathic cystinosis, a rare genetic metabolic disease that causes the amino acid “cystine” to accumulate in all organs of the body.  Created in partnership with people living with cystinosis and their families, Cystinosis United includes a website and Facebook page providing videos, graphics, stories from families and experts, and links to resources from advocacy organizations. “I’ve gotten to know quite a few people living with cystinosis over the years, and one thing I’ve learned is that this journey is complex and everybody experiences it differently,” said Rebekah P., an adult writer living with cystinosis who contributed her story and ideas to the launch of Cystinosis United.  “What excites me about Cystinosis United is that it pulls from common themes that seem to have impacted us all, and aims to [Read more]

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