Help Shape Our Reporting on Disability and Accessibility in America [The New York Times]
New York Times Company (The) (NYT)
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Source: The New York Times
Nearly every person experiences disability at some point in life, or knows someone with a disability. For many of us, living with a disability is deeply personal and intrinsic to who we are, but it also can be isolating.I’ve experienced this myself; five years ago I learned I have Crohn’s disease, an incurable inflammatory bowel disease.Nearly every aspect of my life has been changed by my illness. I have to think about everything I eat or drink, weighing the potential risks to my scarred intestinal tract.I have to plan for numerous doctors’ appointments and the potential side effects of taking immune-suppressing medications: chemo pills every Thursday; a Stelara injection once a month. Exhaustion and discomfort are regular occurrences.Each time I make a new friend or meet a potential romantic partner, I have to explain my illness again. I worry these people will think less of me when I have to cancel plans — or that they might think I’m more trouble than I’m worth.Over the years, I’v
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