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Stock impact report

This 11-year-old has battled a rare disease for years — a breakthrough drug helped deliver relief [CNBC]

Ionis Pharmaceuticals, Inc. (IONS) 
Last ionis pharmaceuticals, inc. earnings: 2/26 07:00 am Check Earnings Report
US:NASDAQ Investor Relations: ionispharma.com
Company Research Source: CNBC
Susannah Rosen was diagnosed with a KIF1A gene mutation at the age of 2½. Patients diagnosed with severe KIF1A gene mutations may live only into early childhood, while patients with mild symptoms can live beyond their 20s. Because it's a progressive neurodegenerative disease, symptoms such as intellectual and muscular disabilities worsen over time. In 2016, when Susannah Rosen was 2½ years old, her parents, Luke Rosen and Sally Jackson, noticed during bath time that something wasn't right. When Sally prompted Susannah to playfully kick her legs in the water, she wasn't able to. “For our first kid, if it was a bee sting, we would run into the emergency room, right? But we were like, she's our second kid, you know? She's gonna catch up on her own ... but she didn't catch up,” Luke said. “After we found out she couldn't kick, we went to the hospital.” Luke and Sally were living with their two kids in New York City. Luke had a thriving career as an actor and writer, and Sally w Show less Read more
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