‘I lost me': How frontotemporal dementia changed a mind and a marriage [Los Angeles Times (CA)]
ITOCHU CORP UNSP/ADR (ITOCY)
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Source: Los Angeles Times
His wife, Julia, now balances caregiving, work and advocacy for other FTD families. The couple finds love and purpose even as the disease erodes memory and self. I lost me. You lost yourself? Yeah. Where did you go? I don't know. I don't have a sense of who I am. Marc Pierrat's mind once ran as smoothly as the gears on his endurance bike. He was a mechanical engineer by training and a marathoner for fun, a guy who maintained complicated systems at work and a meticulously organized garage at his Westlake Village home. Three years after his diagnosis of frontotemporal dementia, Marc's thoughts are a jumble he can't sort out alone. Once-routine tasks are now incomprehensible; memories swirl and slip away. His wife, Julia Pierrat, 58, shepherds Marc, 59, through meals and naptime, ensures he is clean and comfortable, gently offers names and words he can't find himself. It is often impossible for a person to talk about the internal experience of living with FTD, either b
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