Florida law models what genetic disease testing could be [CNBC]
Opko Health, Inc. (OPK)
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Source: CNBC
Florida state Rep. Adam Anderson championed the Sunshine Genetics Act, the first state-backed genetic disease screening program in the nation. Anderson's son, Drew, died in 2019 from Tay-Sachs disease — a rare genetic metabolic disorder. Anderson said he hopes the program, which will screen newborns whose parents opt in, serves as a model other states can follow to expand access to genetic disease testing. In Florida, a new genetic disease screening program allows parents of newborns to receive free whole genome sequencing at birth, putting the state at the forefront of newborn screening. The five-year pilot program, created in July via the Sunshine Genetics Act, is paid for by a mix of private and state funding, and requires parents to opt in to have their child tested. It's the nation's first state-backed genetic screening program. Florida State Rep. Adam Anderson at a press event announcing the passage of the Sunshine Genetics Act. The new law, passed unanimously in
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